My NF is worse now than it was when I was young. I'm 29 and I've got more tumors than I did 10 years ago. I asked my doctor why this is happening and he couldn't give me an answer.
Is it common for Neurofibromatosis to get worse as a person gets older?
Yes, I have type one, and I am now 20. Recently, Ihave been developing a lot more. My dad has it, and it only got bad in his 20s too. I think it depends on the person, but symptoms generally worsen around our age.
Good luck!
Reply:Yeah. I would have to say it get worse. The tumors never really stop growing, more will show up. In fact the mass on my right leg has gotten bigger since I was 15, I'm be 25 in July.
I feel I have more problems then I did when I was 15. It sucks, so get what your going through. I've had a hard time finding a job because of it.
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